In a meeting at the Future of Genomic Medicine conference in La Jolla, California not long from now, director of the National Institutes of Health (NIH), Francis S. Collins, said that in President Barack Obama’s $215 million ‘precision medicine’ program, one of the most punctual assignments will be to figure out how to gather information from a hodgepodge of existing studies.
As per him, the system will accumulate heaps of health data and hereditary information on more than 1 million Americans keeping in mind the end goal to create targeted medications.
Volunteers who have communicated enthusiasm for taking an interest incorporate Kaiser Permanente, the Mayo Clinic and the US Department of Veterans Affairs.
In any case, before picking accomplices, it is vital to work out how to take therapeutic records from different health systems and make them work together.
According to Collins, “That’s a high priority early on. That doesn’t necessarily mean all of the data is in one place being operated by the same software. But the software has to be transparent, and the data must be exquisite. That’s not easy”.
Collins drove an extensive investigation of US subjects in 2004 as director of the National Human Genome Research Institute when he effectively drove a worldwide group to sequence the first human genome.
In spite of the fact that his proposition fizzled, a noteworthy drop in the expense of genomic sequencing and the reception of electronic medical records is currently making it conceivable.
As per Collins, the objective of the undertaking is to comprehend the drivers of human illness and create solutions that are devoted to an individual’s hereditary cosmetics. He is keen on placing patients responsible for choosing how their information will be utilized.
Collins has assigned NIH Deputy Director Kathy Hudson and Yale geneticist Dr. Richard Lifton to lead a board to complete the activity.
The following seven months will be spent by the board to study different recommendations. Collins trusts that by September or October, there will be an agreeable way on the most proficient method to begin it off.